eprintid: 10077635 rev_number: 35 eprint_status: archive userid: 608 dir: disk0/10/07/76/35 datestamp: 2019-07-11 13:15:51 lastmod: 2021-12-13 02:50:15 status_changed: 2019-07-11 13:15:51 type: article metadata_visibility: show creators_name: Davies, N creators_name: Iliffe, S creators_name: Hopwood, J creators_name: Walker, N creators_name: Ross, J creators_name: Rait, G creators_name: Walters, K title: The key aspects of online support that older family carers of people with dementia want at the end of life: A qualitative study ispublished: pub divisions: UCL divisions: B02 divisions: C10 divisions: D20 divisions: D12 divisions: G20 keywords: Dementia, End of life, Palliative care, Caregivers, Internet note: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions. abstract: Aim: Family carers towards the end of life face a range of difficult challenges and have high levels of support needs. The aim of this study was to explore the challenges older (over 65 years) family carers of people with dementia face towards the end of life and their support needs which could be addressed by online support. / Methods: Qualitative study using semi-structured interviews with 23 current and former family carers of people with dementia in England in 2016-2017. Interviews were analysed using thematic analysis. / Results: Most family carers interviewed had positive views of receiving support online via a website. Participants described a series of challenges they felt online support could address and help support them with when caring for someone with dementia towards the end of life: 1) feeling prepared and equipped; 2) feeling connected and supported; 3) balancing their own needs with those of the individual; and 4) maintaining control and being the co-ordinator of care. However many valued a mix of technology and face-to-face interaction in receiving support. / Conclusions: This study has identified the key challenges for older family carers at the end of life that could be met by online support. Online support offers a source of support to supplement face-to-face interaction, as many family carers still wish to talk to someone in person. date: 2020 date_type: published official_url: https://doi.org/10.1080/13607863.2019.1642299 oa_status: green full_text_type: other language: eng primo: open primo_central: open_green verified: verified_manual elements_id: 1671290 doi: 10.1080/13607863.2019.1642299 lyricists_name: Davies, Nathan lyricists_name: Hopwood, Jenny lyricists_name: Iliffe, Stephen lyricists_name: Rait, Greta lyricists_name: Ross, Jamie lyricists_name: Walters, Katherine lyricists_id: NMDAV86 lyricists_id: JHOPW92 lyricists_id: SRILI07 lyricists_id: GRAIT16 lyricists_id: JROSS13 lyricists_id: KWALT44 actors_name: Austen, Jennifer actors_id: JAUST66 actors_role: owner full_text_status: public publication: Ageing and Mental Health volume: 24 number: 10 pagerange: 1654-1661 citation: Davies, N; Iliffe, S; Hopwood, J; Walker, N; Ross, J; Rait, G; Walters, K; (2020) The key aspects of online support that older family carers of people with dementia want at the end of life: A qualitative study. Ageing and Mental Health , 24 (10) pp. 1654-1661. 10.1080/13607863.2019.1642299 <https://doi.org/10.1080/13607863.2019.1642299>. Green open access document_url: https://discovery.ucl.ac.uk/id/eprint/10077635/3/Davies%20CADRE%20overall%20qual%20paperR1_110619_no%20field%20codes_clean.pdf