eprintid: 10077635
rev_number: 35
eprint_status: archive
userid: 608
dir: disk0/10/07/76/35
datestamp: 2019-07-11 13:15:51
lastmod: 2021-12-13 02:50:15
status_changed: 2019-07-11 13:15:51
type: article
metadata_visibility: show
creators_name: Davies, N
creators_name: Iliffe, S
creators_name: Hopwood, J
creators_name: Walker, N
creators_name: Ross, J
creators_name: Rait, G
creators_name: Walters, K
title: The key aspects of online support that older family carers of people with dementia want at the end of life: A qualitative study
ispublished: pub
divisions: UCL
divisions: B02
divisions: C10
divisions: D20
divisions: D12
divisions: G20
keywords: Dementia, End of life, Palliative care, Caregivers, Internet
note: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
abstract: Aim: Family carers towards the end of life face a range of difficult challenges and have high levels of support needs. The aim of this study was to explore the challenges older (over 65 years) family carers of people with dementia face towards the end of life and their support needs which could be addressed by online support. /

Methods: Qualitative study using semi-structured interviews with 23 current and former family carers of people with dementia in England in 2016-2017. Interviews were analysed using thematic analysis. /

Results: Most family carers interviewed had positive views of receiving support online via a website. Participants described a series of challenges they felt online support could address and help support them with when caring for someone with dementia towards the end of life: 1) feeling prepared and equipped; 2) feeling connected and supported; 3) balancing their own needs with those of the individual; and 4) maintaining control and being the co-ordinator of care. However many valued a mix of technology and face-to-face interaction in receiving support. /

Conclusions: This study has identified the key challenges for older family carers at the end of life that could be met by online support. Online support offers a source of support to supplement face-to-face interaction, as many family carers still wish to talk to someone in person.
date: 2020
date_type: published
official_url: https://doi.org/10.1080/13607863.2019.1642299
oa_status: green
full_text_type: other
language: eng
primo: open
primo_central: open_green
verified: verified_manual
elements_id: 1671290
doi: 10.1080/13607863.2019.1642299
lyricists_name: Davies, Nathan
lyricists_name: Hopwood, Jenny
lyricists_name: Iliffe, Stephen
lyricists_name: Rait, Greta
lyricists_name: Ross, Jamie
lyricists_name: Walters, Katherine
lyricists_id: NMDAV86
lyricists_id: JHOPW92
lyricists_id: SRILI07
lyricists_id: GRAIT16
lyricists_id: JROSS13
lyricists_id: KWALT44
actors_name: Austen, Jennifer
actors_id: JAUST66
actors_role: owner
full_text_status: public
publication: Ageing and Mental Health
volume: 24
number: 10
pagerange: 1654-1661
citation:        Davies, N;    Iliffe, S;    Hopwood, J;    Walker, N;    Ross, J;    Rait, G;    Walters, K;      (2020)    The key aspects of online support that older family carers of people with dementia want at the end of life: A qualitative study.                   Ageing and Mental Health , 24  (10)   pp. 1654-1661.    10.1080/13607863.2019.1642299 <https://doi.org/10.1080/13607863.2019.1642299>.       Green open access   
 
document_url: https://discovery.ucl.ac.uk/id/eprint/10077635/3/Davies%20CADRE%20overall%20qual%20paperR1_110619_no%20field%20codes_clean.pdf