eprintid: 10076704 rev_number: 23 eprint_status: archive userid: 608 dir: disk0/10/07/67/04 datestamp: 2019-06-26 15:09:24 lastmod: 2021-09-17 22:36:05 status_changed: 2019-06-26 15:09:24 type: article metadata_visibility: show creators_name: Mes, MA creators_name: Chan, AHY creators_name: Wileman, V creators_name: Katzer, CB creators_name: Goodbourn, M creators_name: Towndrow, S creators_name: Taylor, SJC creators_name: Horne, R title: Patient involvement in questionnaire design: Tackling response error and burden ispublished: pub divisions: UCL divisions: B02 divisions: C08 divisions: D10 divisions: G11 keywords: Patient and public involvement (PPI), Think Aloud Tasks (TATs), Cognitive Interviewing, Questionnaire Design note: © The Author(s). 2019 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/). abstract: Questionnaires capture patient perspectives succinctly and at relatively low cost, making them a popular data collection tool for health researchers. However, questionnaire data can be affected by response error and response burden. Patient involvement during questionnaire design can help reduce the effect of response error and burden. This paper describes a novel approach for patient involvement during questionnaire design, combining methods from cognitive interviewing (Think Aloud Tasks) with an open-ended follow-up discussion to collate and act on patient feedback, while also taking account of the common challenges in questionnaire design (i.e. response error and burden). The strengths and limitations of this approach are discussed, and recommendations are made for future use. date: 2019-12 date_type: published official_url: https://doi.org/10.1186/s40545-019-0175-0 oa_status: green full_text_type: pub language: eng primo: open primo_central: open_green article_type_text: Journal Article verified: verified_manual elements_id: 1666676 doi: 10.1186/s40545-019-0175-0 language_elements: English lyricists_name: Chan, Amy Hai Yan lyricists_name: Horne, Robert lyricists_name: Katzer, Caroline lyricists_name: Mes, Marissa lyricists_id: AHYCH99 lyricists_id: RHORN95 lyricists_id: CBKAT79 lyricists_id: MAMES68 actors_name: Flynn, Bernadette actors_id: BFFLY94 actors_role: owner full_text_status: public publication: Journal of Pharmaceutical Policy and Practice volume: 12 number: 1 article_number: 17 issn: 2052-3211 citation: Mes, MA; Chan, AHY; Wileman, V; Katzer, CB; Goodbourn, M; Towndrow, S; Taylor, SJC; Mes, MA; Chan, AHY; Wileman, V; Katzer, CB; Goodbourn, M; Towndrow, S; Taylor, SJC; Horne, R; - view fewer <#> (2019) Patient involvement in questionnaire design: Tackling response error and burden. Journal of Pharmaceutical Policy and Practice , 12 (1) , Article 17. 10.1186/s40545-019-0175-0 <https://doi.org/10.1186/s40545-019-0175-0>. Green open access document_url: https://discovery.ucl.ac.uk/id/eprint/10076704/7/Horne_Patient%20involvement%20in%20questionnaire%20design.%20Tackling%20response%20error%20and%20burden_VoR.pdf