eprintid: 10064891
rev_number: 22
eprint_status: archive
userid: 608
dir: disk0/10/06/48/91
datestamp: 2019-01-03 09:12:36
lastmod: 2021-12-13 01:31:37
status_changed: 2019-01-03 09:12:36
type: article
metadata_visibility: show
creators_name: Sexton, AK
creators_name: Shepherd, EJ
creators_name: Duke-Williams, OW
creators_name: Eveleigh, A
title: The role and nature of consent in government administrative data
ispublished: pub
divisions: UCL
divisions: B03
divisions: C01
divisions: F15
keywords: Administrative data, consent, privacy, information governance, data protection, open data
note: Creative Commons CC-BY: This article is distributed under the terms of the Creative Commons Attribution 4.0 License (http://www.creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
abstract: This article draws on research undertaken by the authors as part of the Administrative Data Research Centre in England (ADRC-E). Between 2014 and 2017, we conducted four case studies on government administrative data for education, transport, energy and health. The purpose of the research was to examine stakeholder perspectives about the sharing, linking and re-use (secondary use) of government administrative data. In relation to the role and nature of consent given by data subjects for re-use, our study revealed significant variations in data provider and researcher attitudes. Although our study setting was England, we believe that the findings have wider resonance. Our analysis identified six factors which might account for the variations around consent: the specificities of the legislative framework governing the collection and processing of particular data; the type of data being collected and the relational context in which it is created; the broader information governance framework in which the data resides; the creating organization's approach to data release; the relative levels of risk aversity within the creating organization; and public perceptions and social attitudes. In conclusion, we consider whether consent is still the best mechanism available for data re-use, or whether a social contract model of data sharing should be developed.
date: 2018-12
date_type: published
official_url: https://doi.org/10.1177%2F2053951718819560
oa_status: green
full_text_type: pub
primo: open
primo_central: open_green
article_type_text: Article
verified: verified_manual
elements_id: 1617962
doi: 10.1177/2053951718819560
lyricists_name: Duke-Williams, Oliver
lyricists_name: Sexton, Anna
lyricists_name: Shepherd, Elizabeth
lyricists_id: ODUKE12
lyricists_id: AGREE69
lyricists_id: EJSHE28
actors_name: Shepherd, Elizabeth
actors_id: EJSHE28
actors_role: owner
full_text_status: public
publication: Big Data and Society
volume: 5
number: 2
citation:        Sexton, AK;    Shepherd, EJ;    Duke-Williams, OW;    Eveleigh, A;      (2018)    The role and nature of consent in government administrative data.                   Big Data and Society , 5  (2)      10.1177/2053951718819560 <https://doi.org/10.1177/2053951718819560>.       Green open access   
 
document_url: https://discovery.ucl.ac.uk/id/eprint/10064891/1/BDS-OA-published2053951718819560.pdf