eprintid: 10061512
rev_number: 20
eprint_status: archive
userid: 608
dir: disk0/10/06/15/12
datestamp: 2018-11-16 11:22:05
lastmod: 2021-10-10 22:36:28
status_changed: 2018-11-16 11:22:05
type: article
metadata_visibility: show
creators_name: Hoddinott, P
creators_name: Pollock, A
creators_name: O'Cathain, A
creators_name: Boyer, I
creators_name: Taylor, J
creators_name: MacDonald, C
creators_name: Oliver, S
creators_name: Donovan, JL
title: How to incorporate patient and public perspectives into the design and conduct of research
ispublished: pub
divisions: UCL
divisions: B16
divisions: B14
divisions: J81
keywords: Public and Patient Involvement, Public Engagement, Qualitative research,
Research Methods, Co-production, Partnership approaches
note: © 2018 Hoddinott P et al. This is an open access article distributed under the terms of the Creative Commons Attribution Licence (http://creativecommons.org/licenses/by/4.0/),
which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
abstract: International government guidance recommends patient and public involvement (PPI) to improve the relevance and quality of research.  PPI is defined as research being carried out 'with' or 'by' patients and members of the public rather than 'to', 'about' or 'for' them ( http://www.invo.org.uk/). Patient involvement is different from collecting data from patients as participants.  Ethical considerations also differ.  PPI is about patients actively contributing through discussion to decisions about research design, acceptability, relevance, conduct and governance from study conception to dissemination.  Occasionally patients lead or do research.  The research methods of PPI range from informal discussions to partnership research approaches such as action research, co-production and co-learning. This article discusses how researchers can involve patients when they are applying for research funding and considers some opportunities and pitfalls.  It reviews research funder requirements, draws on the literature and our collective experiences as clinicians, patients, academics and members of UK funding panels.
date: 2018
date_type: published
official_url: https://doi.org/10.12688/f1000research.15162.1
oa_status: green
full_text_type: pub
pmcid: PMC6192439
language: eng
primo: open
primo_central: open_green
article_type_text: Journal Article
verified: verified_manual
elements_id: 1600153
doi: 10.12688/f1000research.15162.1
lyricists_name: Oliver, Sandra
lyricists_id: SOLIV93
actors_name: Cuccu, Clara
actors_id: CCCUC40
actors_role: owner
full_text_status: public
publication: F1000Research
volume: 7
number: 752
event_location: England
issn: 2046-1402
citation:        Hoddinott, P;    Pollock, A;    O'Cathain, A;    Boyer, I;    Taylor, J;    MacDonald, C;    Oliver, S;           Hoddinott, P;  Pollock, A;  O'Cathain, A;  Boyer, I;  Taylor, J;  MacDonald, C;  Oliver, S;  Donovan, JL;   - view fewer <#>    (2018)    How to incorporate patient and public perspectives into the design and conduct of research.                   F1000Research , 7  (752)      10.12688/f1000research.15162.1 <https://doi.org/10.12688/f1000research.15162.1>.       Green open access   
 
document_url: https://discovery.ucl.ac.uk/id/eprint/10061512/1/Hoddinott_1db066f5-f7ff-4b09-99f6-899f6b0ec643_15162.pdf