TY - JOUR ID - discovery10059493 N2 - Background: Exertional myalgia and cramps of the limb and trunk muscles are typical in McArdle disease, but mastication and oral motor limitations have not been systematically investigated before. Objective: Determine the reported prevalence and characteristics of limitations on oral motor activities, mastication, swallowing, and other oral motor activities in patients with McArdle disease. Methods: An observational study was carried out in 28 patients using a standardised questionnaire on mastication and oral motor function. Results: 57% of the participants reported difficulties with mastication. Muscle cramps during mastication occurred in 57% of the patients. A feeling that food remains in the throat occurred in 32%. Adaptations during mastication were needed in 42% of the patients. Mastication difficulties, muscle cramps during mastication and mastication adjustments were inversely correlated with age (r2 = ?0.445, p < 0.05; r2 = ?0.509, p < 0.01; r2 = ?0.456, p < 0.05). Feeling of food remaining in throat, cramps during mastication and during other oral motor muscle activities, were correlated with disease severity (r2 = 0.476, p < 0.01; r2 = 0.463, p < 0.01; r2 = 0.461, p < 0.01; r2 = 0.432, p < 0.05). Conclusions: In short, reported mastication difficulties are prevalent in people with McArdle disease, most frequently in younger people. Therefore, awareness of mastication and oral motor problems is required KW - McArdle disease KW - glycogen storage disease type V KW - mastication KW - oral motor function TI - Mastication and Oral Motor Function in McArdle Disease: Patient Reported Complaints EP - 357 AV - public Y1 - 2018/08/02/ SN - 2214-3599 UR - https://doi.org/10.3233/JND-180320 JF - Journal of Neuromuscular Diseases A1 - Kouwenberg, CV A1 - Voermans, NC A1 - Quinlivan, R A1 - van den Engel-Hoek, L VL - 5 SP - 353 N1 - This version is the author accepted manuscript. For information on re-use, please refer to the publisher?s terms and conditions. IS - 3 ER -