eprintid: 10044544 rev_number: 30 eprint_status: archive userid: 608 dir: disk0/10/04/45/44 datestamp: 2018-03-05 12:44:14 lastmod: 2021-12-16 23:45:40 status_changed: 2018-03-05 12:44:14 type: article metadata_visibility: show creators_name: Pollard, A creators_name: Llewellyn, C creators_name: Cooper, V creators_name: Sachikonye, M creators_name: Perry, N creators_name: Nixon, E creators_name: Miners, A creators_name: Youssef, E creators_name: Sabin, C title: Patients' perspectives on the development of HIV services to accommodate ageing with HIV: a qualitative study ispublished: pub divisions: UCL divisions: B02 divisions: C08 divisions: D10 divisions: G11 divisions: D01 divisions: G16 keywords: HIV, ageing, patient preferences, qualitative, service use note: © The Author(s) 2017. This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions. abstract: The objective of this study was to identify the aspects of healthcare that are most valued by people with HIV and to describe their concerns and preferences for the future delivery of services for non-HIV-related illness. Twelve focus groups of people receiving HIV care were conducted in community settings in South-East England. Groups were quota sampled based on age, gender, sexual orientation and ethnicity. Data were analysed using Framework Analysis. The results showed that among the 74 respondents (61% male), a preference for maintaining all care within specialist HIV clinics was commonplace, but was highest among participants with more extensive histories of HIV and comorbidities. Participants valued care-coordination, inter-service communication and timely updates to medical notes. There were high levels of concern around HIV skills in general practices and the capacity of general practitioners to manage patient confidentiality or deal appropriately with the emotional and social challenges of living with HIV. Participants valued, and had an overall preference for, the specialist knowledge and skills of HIV services, suggesting that non-HIV-specialist services will need to build their appeal if they are to have a greater future role in the care of people with HIV. Particular concerns that should be addressed include: patient confidence in the HIV knowledge and skills of non-specialist service providers; clear processes for prescribing and referrals; improved levels of care-coordination and communication between services and increased patient confidence in the capacity of primary care to maintain confidentiality and to appreciate the stigma associated with HIV. date: 2018-04-01 date_type: published official_url: http://doi.org/10.1177/0956462417735723 oa_status: green full_text_type: other language: eng primo: open primo_central: open_green article_type_text: Journal Article verified: verified_manual elements_id: 1500606 doi: 10.1177/0956462417735723 lyricists_name: Cooper, Vanessa lyricists_name: Sabin, Caroline lyricists_id: VLCOO96 lyricists_id: CASAB15 actors_name: Sabin, Caroline actors_name: Laslett, David actors_id: CASAB15 actors_id: DLASL34 actors_role: owner actors_role: impersonator full_text_status: public publication: International Journal of STD & AIDS volume: 29 number: 5 pagerange: 483-490 event_location: England issn: 1758-1052 citation: Pollard, A; Llewellyn, C; Cooper, V; Sachikonye, M; Perry, N; Nixon, E; Miners, A; ... Sabin, C; + view all <#> Pollard, A; Llewellyn, C; Cooper, V; Sachikonye, M; Perry, N; Nixon, E; Miners, A; Youssef, E; Sabin, C; - view fewer <#> (2018) Patients' perspectives on the development of HIV services to accommodate ageing with HIV: a qualitative study. International Journal of STD & AIDS , 29 (5) pp. 483-490. 10.1177/0956462417735723 <https://doi.org/10.1177/0956462417735723>. Green open access document_url: https://discovery.ucl.ac.uk/id/eprint/10044544/1/Sabin_Sabin_Patients%20perspectives%20on%20the%20development%20of%20HIV%20services_Int%20J%20STD%20%20AIDS%20-FINAL%20CLEAN.pdf