@phdthesis{discovery10020764,
          school = {Institute of Education, University of London},
            note = {Thesis: (PhD) University of London Institute of Education, 2013.},
           title = {Service user involvement in research : collaborating on a systematic review with young people who have experience of being in care},
            year = {2013},
        abstract = {This study was conducted as an inquiry into the involvement of service users in research. It
was informed by theories of the social construction of science, which argue that knowledge
is dependent on those who frame, prioritise and conduct research. People with experiential
knowledge as opposed to those with professional training have traditionally been excluded
from these processes, although their experiences may differ considerably from the
professional judgement of it, resulting in research which is removed from the realities of
those whose lives it describes. This study was also informed by an argument that
involvement of people with experience in the field of investigation can highlight areas
neglected by previous research.
To investigate the nature of involvement and its potential, the study set up a collaborative
working group with young people who had all experienced being looked after by the state.
The young people were invited to be involved in setting the question for a systematic review
on a health-related topic, and to participate in all stages of the research. Qualitative data
was collected throughout this process, to inform a qualitative evaluation of the
collaboration between the researcher and the young people.
This thesis first provides an overview of the literature on involvement in research and a
description of the epistemological framework for the investigation. After presenting the
study design and data analysis methods of the study, it describes how the young people
were involved the research and presents the findings of the resulting systematic review.
Based on in-depth analysis of the qualitative data collected during the collaboration, it
considers the negative and positive impact of the involvement, on the review and on those
involved. Finally, it considers the quality of the systematic review and discusses how
consumer involvement may be optimised without compromising on the review quality.},
             url = {http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.572952},
          author = {Liabo, Kristin}
}