Tapuria, A;
Evans, M;
Curcin, V;
Austin, T;
Lea, N;
Kalra, D;
(2017)
Establishment of Requirements and Methodology for the Development and Implementation of GreyMatters, a Memory Clinic Information System.
In: Randell, R, (ed.)
Volume 235: Informatics for Health: Connected Citizen-Led Wellness and Population Health.
(pp. pp. 18-22).
IOS Press: London.
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Abstract
INTRODUCTION: The aim of the paper is to establish the requirements and methodology for the development process of GreyMatters, a memory clinic system, outlining the conceptual, practical, technical and ethical challenges, and the experiences of capturing clinical and research oriented data along with the implementation of the system. METHODS: The methodology for development of the information system involved phases of requirements gathering, modeling and prototype creation, and 'bench testing' the prototype with experts. The standard Institute of Electrical and Electronics Engineers (IEEE) recommended approach for the specifications of software requirements was adopted. An electronic health record (EHR) standard, EN13606 was used, and clinical modelling was done through archetypes and the project complied with data protection and privacy legislation. RESULTS: The requirements for GreyMatters were established. Though the initial development was complex, the requirements, methodology and standards adopted made the construction, deployment, adoption and population of a memory clinic and research database feasible. The electronic patient data including the assessment scales provides a rich source of objective data for audits and research and to establish study feasibility and identify potential participants for the clinical trials. CONCLUSION: The establishment of requirements and methodology, addressing issues of data security and confidentiality, future data compatibility and interoperability and medico-legal aspects such as access controls and audit trails, led to a robust and useful system. The evaluation supports that the system is an acceptable tool for clinical, administrative, and research use and forms a useful part of the wider information architecture.
| Type: | Proceedings paper |
|---|---|
| Title: | Establishment of Requirements and Methodology for the Development and Implementation of GreyMatters, a Memory Clinic Information System |
| Event: | Informatics for Health: Connected Citizen-Led Wellness and Population Health |
| Location: | Netherlands |
| ISBN-13: | 978-1-61499-752-8 |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.3233/978-1-61499-753-5-18 |
| Publisher version: | http://doi.org/10.3233/978-1-61499-753-5-18 |
| Language: | English |
| Additional information: | Copyright © 2017 European Federation for Medical Informatics (EFMI) and IOS Press. This article is published online with Open Access by IOS Press and distributed under the terms of the Creative Commons Attribution Non-Commercial License 4.0 (CC BY-NC 4.0) |
| Keywords: | EHR standards, memory clinic system, methodology, requirements |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Health Informatics UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Health Informatics > CHIME UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Health Informatics > Clinical Epidemiology |
| URI: | https://discovery.ucl.ac.uk/id/eprint/1557834 |
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