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A national register for surveillance of inherited disorders: beta thalassaemia in the United Kingdom.

Modell, B; Khan, M; Darlison, M; King, A; Layton, M; Old, J; ... Varnavides, L; + view all (2001) A national register for surveillance of inherited disorders: beta thalassaemia in the United Kingdom. Bull World Health Organ , 79 (11) 1006 - 1013. Green and gold open access

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Abstract

To demonstrate the value of a national register for surveillance of services for an inherited disorder.

Type:Article
Title:A national register for surveillance of inherited disorders: beta thalassaemia in the United Kingdom.
Location:Switzerland
Identifier:PMID: 11731807
Open access status:An open access publication. A version is also available from UCL Discovery.
Language:English
Additional information:PMCID: PMC2566700
Keywords:Adolescent, Adult, Bone Marrow Transplantation, Child, Child, Preschool, Female, Genome, Human, Great Britain, Health Services Needs and Demand, Humans, Middle Aged, National Health Programs, Population Surveillance, Pregnancy, Pregnancy Outcome, Prenatal Diagnosis, Quality of Health Care, Registries, beta-Thalassemia
UCL classification:UCL > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute for Women's Health > Maternal and Fetal Medicine
UCL > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Epidemiology and Health Care > CHIME
UCL > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Epidemiology and Health Care > Primary Care and Population Health

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