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Involving health professionals in the development of an advanced symptom management system for young people: The ASyMS©-YG study

Gibson, F; Aldiss, S; Taylor, RM; Maguire, R; Kearney, N; (2009) Involving health professionals in the development of an advanced symptom management system for young people: The ASyMS©-YG study. European Journal of Oncology Nursing , 13 (3) pp. 187-192. 10.1016/j.ejon.2009.03.004.

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Abstract

Purpose of the study: ASyMS© is an advanced symptom management system utilising mobile phone technology for patients to report cancer chemotherapy-related symptoms. The aim of this paper is to present health professionals involvement in the development of ASyMS© for use with young people (YG) and evaluate their perceptions of the system. Stage 1: Health professionals reviewed the symptoms chosen by young people to be included on the personal digital assistant questionnaire to confirm they would have universal relevance. These included: mouth sores, nausea, diarrhoea, vomiting and weight loss. Stage 2: Health professionals completed a questionnaire prior to the study commencing, which suggested they felt ASyMS©-YG would give young people control and facilitate timely interventions when symptoms occur. Post-study perceptions were sought through semi-structured interviews and consultation sessions with 23 health professionals. These showed two over-arching themes: young people's symptoms and perceptions of ASyMS©-YG; and six sub-themes: increased control for young people; enhances communication between young people and health professionals; and helps with professional early intervention; increased support for young people; improve knowledge and understanding; technology appealing to young people. Conclusions: This early development work indicates that ASyMS©-YG is acceptable to health professionals and their perceptions of the system were overall very positive. Health professionals will continue to be involved in the study through developing self-care guidelines and alert system, which will be tested in an exploratory trial (stage 3) and randomised controlled trial (stage 4) in the future. © 2009 Elsevier Ltd. All rights reserved.

Type: Article
Title: Involving health professionals in the development of an advanced symptom management system for young people: The ASyMS©-YG study
DOI: 10.1016/j.ejon.2009.03.004
UCL classification: UCL > School of Life and Medical Sciences
UCL > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Child Health
URI: http://discovery.ucl.ac.uk/id/eprint/71003
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