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Security and confidentiality approach for the Clinical E-Science Framework (CLEF)

Kalra, D.; Singleton, P.; Ingram, D.; Milan, J.; MacKay, J.; Detmer, D.; Rector, A.; (2004) Security and confidentiality approach for the Clinical E-Science Framework (CLEF). Presented at: Health Grid 2004, Clermont-Ferrand, France. Green open access

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Abstract

CLEF is an MRC sponsored project in the E-Science programme that aims to establish methodologies and a technical infrastructure for the next generation of integrated clinical and bioscience research. One of the major goals of the project is to provide a pseudonymised repository of histories of cancer patients that can be accessed by researchers. Robust mechanisms and policies are needed to ensure that patient privacy and confidentiality are preserved while delivering a repository of such medically rich information for the purposes of scientific research. This paper summarises the overall approach adopted by CLEF to meet data protection requirements, including the data flows, pseudonymisation measures and monitoring policies that are currently being developed. Once evaluated, it is hoped that the CLEF approach can serve as a model for other distributed electronic health record repositories to be accessed for research.

Type: Conference item (Presentation)
Title: Security and confidentiality approach for the Clinical E-Science Framework (CLEF)
Event: Health Grid 2004
Location: Clermont-Ferrand, France
Dates: 29th-30th January 2004
Open access status: An open access version is available from UCL Discovery
Publisher version: http://clermont2004.healthgrid.org/
Language: English
UCL classification: UCL > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Epidemiology and Health Care > CHIME
URI: http://discovery.ucl.ac.uk/id/eprint/1587
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