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What is diabetes distress and how can we measure it? A narrative review and conceptual model

Dennick, K; Sturt, J; Speight, J; (2017) What is diabetes distress and how can we measure it? A narrative review and conceptual model. Journal of Diabetes and its Complications , 31 (5) pp. 898-911. 10.1016/j.jdiacomp.2016.12.018. Green open access

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Abstract

BACKGROUND: Diabetes distress is the negative emotional impact of living with diabetes. It has tangible clinical importance, being associated with sub-optimal self-care and glycemic control. Diabetes distress has been operationalized in various ways and several measures exist. Measurement clarity is needed for both scientific and clinical reasons. OBJECTIVES: To clarify the conceptualization and operationalization of diabetes distress, identify and distinguish relevant measures, and evaluate their appropriateness for this purpose. RESULTS: Six measures were identified: Problem Areas in Diabetes (PAID) scale, Diabetes Distress Scale (DDS); Type I Diabetes Distress Scale (T1-DDS), Diabetes-specific Quality of Life Scale—Revised (DSQoLs-R) ‘Burden and Restrictions—Daily Hassles’ sub-scale, Well-being Questionnaire 28 (W-BQ 28) ‘Diabetes Well-being’ sub-scale, and Illness Perceptions Questionnaire—Revised (IPQ-R) ‘Emotional Representations’ sub-scale. Across these measures a broad spectrum of diabetes distress is captured, including distress associated with treatment regimen, food/eating, future/complications, hypoglycemia, social/interpersonal relationships, and healthcare professionals. No single measure appears fully comprehensive. Limited detail of the qualitative work informing scale design is reported, raising concerns about content validity. CONCLUSIONS: Across the available measures diabetes distress is seemingly comprehensively assessed and measures should be considered in terms of their focus and scope to ensure the foci of interventions are appropriately targeted.

Type: Article
Title: What is diabetes distress and how can we measure it? A narrative review and conceptual model
Open access status: An open access version is available from UCL Discovery
DOI: 10.1016/j.jdiacomp.2016.12.018
Publisher version: http://dx.doi.org/10.1016/j.jdiacomp.2016.12.018
Language: English
Additional information: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
Keywords: Diabetes distress, Patient-reported outcome measures, Validity, Narrative review, Conceptual model, QUALITY-OF-LIFE, EMOTIONAL DISTRESS, PROBLEM AREAS, SELF-CARE, PERCEPTION QUESTIONNAIRE, PSYCHOMETRIC VALIDATION, PROFESSIONAL SUPPORT, SYMPTOM CHECKLIST, GLYCEMIC CONTROL, CHRONIC ILLNESS
UCL classification: UCL > Provost and Vice Provost Offices
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences > Clinical, Edu and Hlth Psychology
URI: http://discovery.ucl.ac.uk/id/eprint/1559259
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