UCL logo

UCL Discovery

UCL home » Library Services » Electronic resources » UCL Discovery

Development of an acceptable and feasible self-management group for children, young people and families living with Type 1 diabetes

Cai, RA; Holt, RI; Casdagli, L; Viner, RM; Thompson, R; Barnard, K; Christie, D; (2017) Development of an acceptable and feasible self-management group for children, young people and families living with Type 1 diabetes. Diabetic Medecine , 34 (6) pp. 813-820. 10.1111/dme.13341. Green open access

[img]
Preview
Text
Cai_et_al-2017-Diabetic_Medicine.pdf - ["content_typename_Accepted version" not defined]

Download (140kB) | Preview

Abstract

AIMS: This study developed an acceptable and feasible self-management intervention that addresses the self-identified needs of children and young people with Type 1 diabetes and their parents. METHODS: Phase 1 reviewed previous interventions and interviewed the clinical team, young people and families. Phase 2 ran three age-matched focus groups with 11 families of children aged 8-16 years. Feedback was used to modify the workshop. Phase 3 evaluated feasibility of delivery, as well as the effects on metabolic control, quality of life and fear of hypoglycaemia, measured at baseline and 1-3 months post intervention. RESULTS: Eighty-nine families were invited to take part. Twenty-two (25%) participated in seven pilot groups (median age of young people 10 years, 36% girls). The intervention comprised a developmentally appropriate workshop for young people and parents addressing: (1) blood glucose control, (2) the potential impact of long-term high HbA1c , (3) the effects of 'hypos' and 'hypers', (4) self-management techniques and (5) talking confidently to people about diabetes. Participants were enthusiastic and positive about the workshop and would recommend it to others. Young people liked sharing ideas and meeting others with diabetes, while parents enjoyed listening to their children talk about their diabetes knowledge. CONCLUSIONS: Families living with Type 1 diabetes participated in developing a self-management group intervention. Although we demonstrated acceptability and feasibility, the pilot study results do not support the development of a randomized control trial to evaluate the effectiveness in improving HbA1c . This article is protected by copyright. All rights reserved.

Type: Article
Title: Development of an acceptable and feasible self-management group for children, young people and families living with Type 1 diabetes
Location: England
Open access status: An open access version is available from UCL Discovery
DOI: 10.1111/dme.13341
Publisher version: http://dx.doi.org/10.1111/dme.13341
Language: English
Additional information: This article is protected by copyright. All rights reserved. This is the peer reviewed version of the following article: Cai, RA; Holt, RI; Casdagli, L; Viner, RM; Thompson, R; Barnard, K; Christie, D; (2017) Development of an acceptable and feasible self-management group for children, young people and families living with Type 1 diabetes. Diabetic Medecine, which has been published in final form at 10.1111/dme.13341. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving.
UCL classification: UCL > Provost and Vice Provost Offices
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences > Div of Medicine
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences > Div of Medicine > Inflammation
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Pop Health Sciences > Institute of Epidemiology and Health
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Pop Health Sciences > Institute of Epidemiology and Health > Epidemiology and Public Health
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Pop Health Sciences > UCL GOS Institute of Child Health
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Pop Health Sciences > UCL GOS Institute of Child Health > ICH Pop, Policy and Practice Prog
URI: http://discovery.ucl.ac.uk/id/eprint/1543218
Downloads since deposit
73Downloads
Download activity - last month
Download activity - last 12 months
Downloads by country - last 12 months

Archive Staff Only

View Item View Item