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Patient and Public Involvement in the Development of Healthcare Guidance: An Overview of Current Methods and Future Challenges

Rashid, A; Thomas, V; Shaw, T; Leng, G; (2016) Patient and Public Involvement in the Development of Healthcare Guidance: An Overview of Current Methods and Future Challenges. The Patient - Patient-Centered Outcomes Research , 10 (3) pp. 277-282. 10.1007/s40271-016-0206-8. Green open access

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Abstract

Clinical guidelines and health technology assessments are valuable instruments to improve the quality of healthcare delivery and aim to integrate the best available evidence with real-world, expert context. The role of patient and public involvement in their development has grown in recent decades, and this article considers the international literature exploring aspects of this participation, including the integration of experiential and scientific knowledge, recruitment strategies, models of involvement, stages of involvement, and methods of evaluation. These developments have been underpinned by the parallel rise of public involvement and evidence-based medicine as important concepts in health policy. Improving the recruitment of guideline group chairs, widening evidence reviews to include patient preference studies, adapting guidance presentation to highlight patient preference points and providing clearer instructions on how patient organisations can submit their intelligence are emerging proposals that may further enhance patient and public involvement in their processes.

Type: Article
Title: Patient and Public Involvement in the Development of Healthcare Guidance: An Overview of Current Methods and Future Challenges
Open access status: An open access version is available from UCL Discovery
DOI: 10.1007/s40271-016-0206-8
Publisher version: http://doi.org/10.1007/s40271-016-0206-8
Language: English
Additional information: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
UCL classification: UCL > Provost and Vice Provost Offices
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences > UCL Medical School
URI: http://discovery.ucl.ac.uk/id/eprint/1530559
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