Kersten, P and McLellan, DL and Gross-Paju, K and Grigoriadis, N and Bencivenga, R and Beneton, C and Charlier, M and Ketelaer, P and Thompson, AJ (2000) A questionnaire assessment of unmet needs for rehabilitation services and resources for people with multiple sclerosis: results of a pilot survey in five European countries. CLIN REHABIL , 14 (1) 42 - 49.
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Objective: To develop an international services and needs assessment instrument (SUN) for people with multiple sclerosis and their carers and to pilot this in different countries of the European Community.Design: interview study of people with multiple sclerosis, their carers and nominated key professionals examining the unmet needs of patients and carers.Setting: Belgium, Estonia, Greece, Italy and the United Kingdom.Main outcome measures: Needs assessment questionnaire. Results: The study comprised 137 people with multiple sclerosis, 125 carers and ill professionals. Patients reported on average 2.9 unmet needs for themselves; their carers and professionals reported on average 2.4. Needs were categorized into seven broad categories. Due to difficulties experienced by the local researchers in distinguishing between needs and objectives a large proportion of needs had to be assigned to the 'other' category.Conclusions: The SUN is a valuable and practicable tool for the identification of unmet needs for people with multiple sclerosis and their carers. Formal validation and reliability testing of the different language versions is recommended.
|Title:||A questionnaire assessment of unmet needs for rehabilitation services and resources for people with multiple sclerosis: results of a pilot survey in five European countries|
|Keywords:||DISABLEMENT, EXPERIENCE, PREVALENCE, DISABILITY, MODELS|
|UCL classification:||UCL > School of Life and Medical Sciences > Faculty of Brain Sciences|
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