Pellicano, L;
Stears, M;
(2011)
Bridging autism, science and society: Moving towards an ethically-informed approach to autism research.
Autism Research
, 4
(4)
pp. 271-282.
10.1002/aur.201.
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Abstract
Recent developments in the science of autism have provoked widespread unease among autism activists. Drawing on the findings of a major international gathering of researchers, ethicists, and activists, this paper presents the first major analysis of the ethical questions arising from this unease. We outline the scientific developments that have provoked the most discomfort, analyze the response to these developments from within and without the autism community, and trace the current state of the ethical debate. Having done so, we contend that these ethical questions are unlikely to be resolved as they depend on fundamentally conflicting assumptions about the nature and desirability of neurocognitive difference. We conclude by arguing for a new range of democratic mechanisms that could enable the scientific community, autistics, and other concerned parties to respond collectively to such entrenched ethical disputes.
| Type: | Article |
|---|---|
| Title: | Bridging autism, science and society: Moving towards an ethically-informed approach to autism research |
| DOI: | 10.1002/aur.201 |
| Publisher version: | http://dx.doi.org/10.1002/aur.201 |
| Language: | English |
| Keywords: | autism; ethics; genetics; neuroscience; neurodiversity; activism |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Education UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education > IOE - Social Research Institute UCL > Provost and Vice Provost Offices > UCL SLASH UCL > Provost and Vice Provost Offices > UCL SLASH > Faculty of S&HS UCL > Provost and Vice Provost Offices > UCL SLASH > Faculty of S&HS > Dept of Political Science |
| URI: | https://discovery.ucl.ac.uk/id/eprint/1475276 |
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