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Strategies of regulation: illustrations from the work of the Human Genetics Commission

Montgomery, JR; (2013) Strategies of regulation: illustrations from the work of the Human Genetics Commission. In: Flear, ML and Farrell, A-M and Hervey, TK and Murphy, T, (eds.) European Law and New Health Technologies. (103 - 105). Oxford University Press: Oxford, UK.

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Abstract

This chapter draws on the author's experience as Chair of the Human Genetics Commission from 2009 to 2012, and reflects on factors affecting the selection of regulatory options by the Commission. The Commission did not directly wield legal power, but it had a recognized place in UK bioethical governance. It was established in 2000 to advise the UK government on the ethical, legal, and social issues arising from human genetics; it was disbanded in 2012 as part of the reconfiguration of non-governmental bodies. Examples are presented to illustrate how the Commission weighed the opportunities for both short and longer term intervention and also a range of regulatory options. Among the Commission's regulatory successes was the instigation of legal interventions for the crime of DNA theft under the Human Tissue Act 2004.

Type: Book chapter
Title: Strategies of regulation: illustrations from the work of the Human Genetics Commission
ISBN: 0191634840
ISBN-13: 9780191634840
DOI: 10.1093/acprof:oso/9780199659210.001.0001
Publisher version: http://dx.doi.org/10.1093/acprof:oso/9780199659210...
Language: English
Additional information: Copyright © Oxford University Press 2013. pp.1 103-105, European Law and New Health Technologies, edited by Mark L. Flear, Anne-Maree Farrell, Tamara K. Hervey, and Thérèse Murphy, 2013, reproduced by permission of Oxford University Press: https://global.oup.com/academic/product/european-law-and-new-health-technologies-9780199659210?cc=gb&lang=en&.
Keywords: government bodies, bioethics, bioethical governance, DNA theft, Human Tissue Act 2004
UCL classification: UCL > Provost and Vice Provost Offices
UCL > Provost and Vice Provost Offices > UCL SLASH
UCL > Provost and Vice Provost Offices > UCL SLASH > Faculty of Laws
URI: http://discovery.ucl.ac.uk/id/eprint/1432997
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