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Security and confidentiality approach for the Clinical E-Science Framework (CLEF)

Kalra, D; Singleton, P; Ingram, D; Milan, J; Mackay, J; Detmer, D; Rector, A; (2003) Security and confidentiality approach for the Clinical E-Science Framework (CLEF). In: Cox, S, (ed.) Proceedings of UK e-Science All Hands Meeting 2003. (825 - 832). Engineering and Physical Sciences Research Council (EPSRC)

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Abstract

CLEF is an MRC sponsored project in the E-Science programme that aims toestablish policies and infrastructure for the next generation of integrated clinical andbioscience research. One of the major goals of the project is to provide apseudonymised repository of histories of cancer patients that can be accessed byresearchers. Robust mechanisms and policies are needed to ensure that patientprivacy and confidentiality are preserved while delivering a repository of suchmedically rich information for the purposes of scientific research. This papersummarises the overall approach adopted by CLEF to meet data protectionrequirements, including the data flows and pseudonymisation mechanisms that arecurrently being developed. Intended constraints and monitoring policies that willapply to research interrogation of the repository are also outlined. Once evaluated, itis hoped that the CLEF approach can serve as a model for other distributedelectronic health record repositories to be accessed for research.

Type:Book chapter
Title:Security and confidentiality approach for the Clinical E-Science Framework (CLEF)
ISBN:1904425119
Additional information:Imported via OAI, 7:29:01 25th Jan 2006
UCL classification:UCL > School of Life and Medical Sciences > Faculty of Life Sciences > Biosciences (Division of) > Genetics, Evolution and Environment
UCL > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Epidemiology and Health Care > CHIME

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