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Security and confidentiality approach for the Clinical E-ScienceFramework (CLEF)

Kalra, D; Singleton, P; Ingram, D; Milan, J; MacKay, J; Detmer, D; Rector, A; (2004) Security and confidentiality approach for the Clinical E-ScienceFramework (CLEF). In: (Proceedings) Health Grid 2004. : Clermont-Ferrand, France.

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Abstract

CLEF is an MRC sponsored project in the E-Science programme that aims toestablish methodologies and a technical infrastructure for the next generation ofintegrated clinical and bioscience research. One of the major goals of the project isto provide a pseudonymised repository of histories of cancer patients that can beaccessed by researchers. Robust mechanisms and policies are needed to ensure thatpatient privacy and confidentiality are preserved while delivering a repository ofsuch medically rich information for the purposes of scientific research. This papersummarises the overall approach adopted by CLEF to meet data protectionrequirements, including the data flows, pseudonymisation measures and monitoringpolicies that are currently being developed. Once evaluated, it is hoped that theCLEF approach can serve as a model for other distributed electronic health recordrepositories to be accessed for research.

Type:Proceedings paper
Title:Security and confidentiality approach for the Clinical E-ScienceFramework (CLEF)
Event:Health Grid 2004
Additional information:Imported via OAI, 7:29:02 27th Jan 2006
UCL classification:UCL > School of Life and Medical Sciences > Faculty of Life Sciences > Biosciences (Division of) > Genetics, Evolution and Environment
UCL > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Epidemiology and Health Care > CHIME

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