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A systematic review and critical appraisal of quality indicators to assess optimal palliative care for older people with dementia

Amador, S; Sampson, EL; Goodman, C; Robinson, L; SEED Research Team; (2019) A systematic review and critical appraisal of quality indicators to assess optimal palliative care for older people with dementia. Palliative Medicine , 33 (4) pp. 415-429. 10.1177/0269216319834227. Green open access

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Abstract

BACKGROUND:: A challenge for commissioners and providers of end-of-life care in dementia is to translate recommendations for good or effective care into quality indicators that inform service development and evaluation. AIM:: To identify and critically evaluate quality indicators for end-of-life care in dementia. RESULTS:: We found 8657 references, after de-duplication. In all, 19 publications describing 10 new and 3 updated sets of indicators were included in this review. Ultimately, 246 individual indicators were identified as being relevant to dementia end-of-life care and mapped against EAPC guidelines. CONCLUSIONS:: We systematically derived and assessed a set of quality indicators using a robust framework that provides clear definitions of aspects of palliative care, which are dementia specific, and strengthens the theoretical underpinning of new complex interventions in end-of-life care in dementia.

Type: Article
Title: A systematic review and critical appraisal of quality indicators to assess optimal palliative care for older people with dementia
Location: England
Open access status: An open access version is available from UCL Discovery
DOI: 10.1177/0269216319834227
Publisher version: https://doi.org/10.1177/0269216319834227
Language: English
Additional information: This work is licensed under a Creative Commons Attribution 4.0 International License. The images or other third party material in this article are included in the article’s Creative Commons license, unless indicated otherwise in the credit line; if the material is not included under the Creative Commons license, users will need to obtain permission from the license holder to reproduce the material. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/
Keywords: Systematic review, dementia, end-of-life care, healthcare, palliative care, quality indicators, terminal care
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Division of Psychiatry
URI: https://discovery.ucl.ac.uk/id/eprint/10070147
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