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Transforming care for rare and inherited cardiovascular diseases through education and training

Elliott, PM; Camici, P; (2018) Transforming care for rare and inherited cardiovascular diseases through education and training. [Editorial comment]. International Journal of Cardiology , 257 pp. 342-343. 10.1016/j.ijcard.2018.01.035. Green open access

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Abstract

The European Union defines a rare disease as a condition that affects less than 5 in 10,000 of the general population. By this definition, there are between 6000 and 8000 known rare disorders that together affect 1 in 17 Europeans. For this reason, rare disorders are the subject of intense scrutiny by governments and healthcare organisations that are developing new systems for clinical care, research and patient involvement.

Type: Article
Title: Transforming care for rare and inherited cardiovascular diseases through education and training
Location: Netherlands
Open access status: An open access version is available from UCL Discovery
DOI: 10.1016/j.ijcard.2018.01.035
Publisher version: https://doi.org/10.1016/j.ijcard.2018.01.035
Language: English
Additional information: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions.
Keywords: The European Union, Rare diseases, Rare disorders, Healthcare organisations, Clinical care, Healthcare research
UCL classification: UCL > Provost and Vice Provost Offices
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Pop Health Sciences > Institute of Cardiovascular Science
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Pop Health Sciences > Institute of Cardiovascular Science > Clinical Science
URI: http://discovery.ucl.ac.uk/id/eprint/10045791
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