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Informal carers' perspectives on the delivery of acute hospital care for patients with dementia: a systematic review

Beardon, S; Patel, K; Davies, B; Ward, H; (2018) Informal carers' perspectives on the delivery of acute hospital care for patients with dementia: a systematic review. BMC Geriatrics , 18 , Article 23. 10.1186/s12877-018-0710-x. Green open access

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Abstract

BACKGROUND: Providing high quality acute hospital care for patients with dementia is an increasing challenge as the prevalence of the disease rises. Informal carers of people with dementia are a critical resource for improving inpatient care, due to their insights into patients’ needs and preferences. We summarise informal carers’ perspectives of acute hospital care to inform best practice service delivery. METHODS: We conducted a systematic search of bibliographic databases and sought relevant grey literature. We used thematic synthesis analysis to assimilate results of the studies and describe components of care that influence perceived quality. RESULTS: Twenty papers met the inclusion criteria. Findings identified four overarching components of care that influenced carer experience and their perceptions of care quality: ‘Patient care’, ‘Staff interactions’, ‘Carer’s situation’ and ‘Hospital environment’. Need for improvement was identified in staff training, provision of help with personal care needs, and dignified treatment of patients. Carers need to be informed, involved and supported during hospital admission in order to promote the most positive experience. CONCLUSIONS: This review identifies common perspectives of informal carers of people with dementia in the acute hospital setting and highlights important areas to address to improve the experience of an admission for both carer and patient.

Type: Article
Title: Informal carers' perspectives on the delivery of acute hospital care for patients with dementia: a systematic review
Open access status: An open access version is available from UCL Discovery
DOI: 10.1186/s12877-018-0710-x
Publisher version: http://dx.doi.org/10.1186/s12877-018-0710-x
Language: English
Additional information: © The Author(s). 2018. This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
Keywords: Science & Technology, Life Sciences & Biomedicine, Geriatrics & Gerontology, Gerontology, Dementia, Carers, Hospital, Experience, Qualitative, Person-Centered Care, Cognitive Impairment, Older Patients, Of-Life, People, Experiences, Inpatients, Caregivers, Responses, Outcomes
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Epidemiology and Health
URI: https://discovery.ucl.ac.uk/id/eprint/10043256
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