Laybourne, AH;
Morgan, M;
Watkins, SH;
Lawton, R;
Ridsdale, L;
Goldstein, LH;
(2015)
Self-management for people with poorly controlled epilepsy: Participants' views of the UK Self-Management in epILEpsy (SMILE) program.
Epilepsy & Behavior
, 52
(Part A)
pp. 159-164.
10.1016/j.yebeh.2015.08.023.
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Abstract
BACKGROUND: Epilepsy is a long-term condition that requires self-management, but currently, there is no well-evaluated epilepsy self-education or self-management intervention in the United Kingdom (UK). AIM: The aim of this study was to examine the views and experiences of the first participants of the Self-Management in epILEpsy UK (SMILE UK) program to assist the development of a full trial. METHOD: In-depth semistructured interviews and group discussions were conducted with 10 people with poorly controlled epilepsy to explore their views and experiences of the self-management program. Interviews were audio-recorded, transcribed, and analyzed thematically. RESULTS: All participants viewed the program positively. Three themes emerged: i) peer support was experienced through knowledge sharing, disclosure of experiences, and exchange of contact details; ii) participants felt better equipped to enter discussions with doctors and other health-care professionals about their condition; and iii) participants reported an improvement in their personal life through increased confidence to live with epilepsy and acceptance of their diagnosis. CONCLUSION: A brief group self-management intervention increased knowledge and confidence in managing epilepsy.
| Type: | Article |
|---|---|
| Title: | Self-management for people with poorly controlled epilepsy: Participants' views of the UK Self-Management in epILEpsy (SMILE) program |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1016/j.yebeh.2015.08.023 |
| Publisher version: | http://doi.org/10.1016/j.yebeh.2015.08.023 |
| Language: | English |
| Additional information: | © 2015 The Authors. Published by Elsevier Inc. This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/). |
| Keywords: | Epilepsy; Self-management; Long-term conditions; MOSES |
| UCL classification: | UCL |
| URI: | https://discovery.ucl.ac.uk/id/eprint/10037905 |
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